The title of this post comes from a fascinating article I read in my university’s alumni magazine. More than 15% of the global population – about 1 billion people – have been diagnosed with a physical, psychiatric, learning, developmental, sensory, or cognitive disability. And that number is likely to increase due to emerging diseases and natural disasters.
We treat disability like it’s abnormal but the reality is anyone who lives long enough will become disabled either because of an accident or age. For this reason, author and bioethicist Ashley Shew uses the term “temporarily able-bodied.” Yeeees. When I first heard that term, my entire body relaxed because it made so much sense and also reframed my experience as someone with idiopathic hypersomnia. Because I have to nap every day and am easily tired by too much activity, I perpetually feel abnormal. Why can’t I do the things other people can do? And how can I regain health privilege as quickly as possible?
Getting the reminder that people who aren’t currently disabled are experiencing something temporary helps me to feel better. It means I’m not abnormal and instead, other people are going to “catch up” to me, so to speak. I’m learning to live with disability sooner than other people but health privilege is temporary for everyone if they live long enough. To be alive means to have a body that will eventually break down. Instead of feeling envious of other people, I’m working to unapologetically love my body as it is, right now. There’s nothing wrong with me even though an ableist society says otherwise.
An excellent example of accessibility — not everyone can hike a rugged trail but paved trails allow those with mobility issues to see these natural wonders. Photo by Romain Virtuel on Unsplash
If you’re unfamiliar with that term, ableism is a system of discrimination and oppression that favors nondisabled lives and ways of being, often under the guise of empowerment. For instance, prosthetic legs enable amputees to walk “normally.” That’s not to say technology can’t make life easier for disabled people – it does – but society encourages disabled people to see themselves as chronically incomplete or lacking. There’s something wrong with them because they’re not able-bodied. This distracts from the real social ill, that “the world is set up to exclude disabled people,” to quote Shew.
The reality is we’re not all meant to be the same. My spiritual teacher says, “Human society is just like a garland which is made of different types of flowers, woven together by one common thread. The overall beauty of the garland is dependent upon the beauty of each flower. Likewise, each strata of society must be equally strengthened if we are to maintain the unity and solidarity of society.”
So first, diversity is the name of the game, and two, each strata of society must be equally strengthened. That means recognizing there is a place for everyone and furthermore, creating a more inclusive society that plans for the fact people are temporarily able-bodied. Instead of making people feel incomplete or ashamed for losing health privilege (or never having it in the first place), we’d be better off recognizing disability is inevitable. What are we doing to make the world easier, better, more inclusive, and more accommodating? Because after all, the future is disabled.
I dream of a world where we understand health is a privilege that eventually everyone loses. A world where instead of trying to hold on to health privilege, we create a society that accommodates disability. A world where we strengthen all segments of society because we recognize disability is a fact of life. A world where we recognize the diversity of human beings is beautiful, just like a garland.
Another world is not only possible, it’s probable.
Something I’ve heard before is that physical health is a privilege. When people said that, I brushed it aside because I thought they meant health is something to be grateful for, a blessing, a gift. But now, as I approach my 37th birthday, I recognize physical health is an attribute to be grateful for yes, but it’s also a privilege similar to how we talk about White privilege. Meaning, something most people don’t think about, or take for granted, unless they’re in the group that doesn’t have it.
There’s a lot to say about White privilege but to summarize, it’s the obvious and less obvious passive advantages that White people may not recognize they have. It’s moving through the world with relative ease. Swap out “White” for “healthy” and the privilege is similar (similar but not the same). This post is focusing specifically on physical health, but there is also mental health privilege.
For someone like me – a person recovering from adrenal fatigue, a sleep disorder, digestive issues, a spoonie – I’m not able to navigate the world with relative ease. I’m forever worried my small business will crumble because I can’t work full-time due to limited energy. And supporting myself with a part-time job is challenging, which I know, because I did it for years.
This graffiti says it all. Photo by Claudio Schwarz on Unsplash
In the days before my birthday, I’m crying because I feel like I’m getting older without ever having been young. For only three years in my 20s did I feel mildly energetic, healthy, vibrant, pleased with how my body looked and functioned. The rest of my life has been one issue after another after another. And as I’m crying about my own health challenges, I think about friends of mine, or people I know, who have chronic fatigue syndrome, fibromyalgia, Crohn’s disease, thyroid issues, etc., and I realize we’re sold this image of what is “normal,” of how our bodies are “supposed” to be. Not unlike the ideals sold to us via White supremacy like beauty standards and the body mass index.
Thinking about all of this, I really get that health is a privilege. Not everyone is given health. We aren’t all born with perfectly functioning bodies that slowly deteriorate over time as we age. No. Some of us never have perfectly functioning bodies. Some of us have to take medication and eat certain foods and take daily naps to even approach what others have naturally.
Now instead of feeling sad, I’m angry because I’ve bought into this message about an ideal body – and I’m not talking shape and size – that is literally not achievable for some people. The kicker though is our bodies can change drastically from one year to the next depending on a multitude of factors – some of which we control. I personally spend an inordinate amount of time on those factors. A soul sister tells me, “I don’t know of anyone who takes as good of care of their body as you do.” And yet, all of that care barely moves the needle on my health. And I’m lucky because I don’t live with constant pain unlike some people!
It seems to me we’re in the age of celebrating diversity with race, gender, sexual orientation, and cognitive function (in some circles). It’s time to welcome in the body too. Not only when it’s obvious, but when it’s subtle.
My spiritual teacher says, “Human society is just like a garland which is made of different types of flowers, woven together by one common thread. The overall beauty of the garland is dependent upon the beauty of each flower. Likewise, each strata of society must be equally strengthened if we are to maintain the unity and solidarity of society.”
To me that means normalizing some people have health challenges in the “prime” of their life. It means recognizing some people never experience relative ease in how they move through the world on a physical level. It means making room for and supporting people like me who have invisible illnesses. It means not relegating us to the shadows or acting like we’re an anomaly because we’re not. We’re just as normal as anyone else.
I dream of a world where we create space for all people and not act like some are part of the “in” crowd and others are not. A world where we recognize diversity is what makes human society beautiful. A world where we understand that uniqueness is normal and in turn means it’s important to create a more accessible, supportive world for us all.
Another world is not only possible, it’s probable.